Please use this identifier to cite or link to this item: http://repositorio.unicamp.br/jspui/handle/REPOSIP/94467
Type: Artigo de periódico
Title: Turner Syndrome: The Patients's View
Author: Suzigan L.Z.C.
Paiva E Silva R.B.
Lemos Marini S.H.V.
Baptista M.T.M.
Guerra Jr. G.
Magna L.A.
Maciel Guerra A.T.
Abstract: Objective: To identify how patients with Turner syndrome perceive their condition. Methods: Thirty-six women with Turner syndrome, aged between 15 and 25 years and with over 2 years of medical follow-up, were individually interviewed about: the impact of Turner syndrome at the moment of the diagnosis, their understanding of the syndrome, its effect in their lives, and their expectations for the future. Results: Only 31% of the patients immediately understood the diagnosis. Their feelings associated to that moment were neutral (47%) or concerned (33%). About one third of the interviewed women were unable to explain the etiology of Turner syndrome (42%), did not relate their symptoms with Turner syndrome (36%), and/or believe there might be a cure for it (44%). Although most of the interviewed women affirm that the syndrome has no interference in their lives (67%) and that they consider themselves happy persons (78%), in more than half of the interviews there are evidences of difficulties in social interaction and love relationship, low self-esteem, dissatisfaction with their physical appearances, especially the short stature and infertility. Their hopes for the future refer mainly to study and have a job. Although being, on average, 19 years old, one in two women (53%) still hopes to grow up. Conclusion: Besides medical treatment, it is important that the knowledge of the patients about the syndrome and some issues as infertility, short stature, self-esteem and social interactions receive proper and continuous attention from the moment of the diagnosis. The ideal situation should be a joint-action of a psychologist and the medical team. Copyright © 2004 by Sociedade Brasileira de Pediatria.
Editor: 
Rights: aberto
Identifier DOI: 10.2223/1205
Address: http://www.scopus.com/inward/record.url?eid=2-s2.0-16644372846&partnerID=40&md5=fb8f10454727c8f97a97fc40b04d14cc
Date Issue: 2004
Appears in Collections:Unicamp - Artigos e Outros Documentos

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