Please use this identifier to cite or link to this item: http://repositorio.unicamp.br/jspui/handle/REPOSIP/32971
Type: Artigo de periódico
Title: Adolescentes como voluntários de pesquisa e consentimento livre e esclarecido: conhecimento e opinião de pesquisadores e jovens
Title Alternative: Adolescents as research subjects and free informed consent: knowledge and opinion of researchers and adolescents
Author: Guariglia, Fabiana
Bento, Silvana Ferreira
Hardy, Ellen
Abstract: This article presents the results of a study that evaluated the knowledge and opinions of researchers and adolescents that served as their research subjects on the legal norms that regulate the participation of the latter as research subjects, the capacity of adolescents to make autonomous decisions regarding participation, and the adolescent experience after agreeing to take part in a study. This was a qualitative study with a convenience sample, the size of which was defined by the criteria of informational redundancy. Interviews were conducted with three researchers who had used adolescents as research subjects and nine of these subjects. This number of interviews was sufficient to reach informational redundancy. Data was collected through recorded semi-structured interviews, with open questions. All the researchers were familiar with some legal document related to the participation of adolescents as subjects of research. On the other hand, the adolescents were surprised because they were not aware of the existence of such documents. However, they considered them necessary for their own protection. In general, researchers and adolescents believe that adolescents have the capacity to decide autonomously to participate as research subjects. The adolescents affirmed that they had decided to volunteer conscientiously.
Apresentam-se resultados de um estudo que avaliou o conhecimento e a opinião de pesquisadoras e jovens, que haviam sido sujeitos de suas pesquisas sobre as normas legais referentes à participação de adolescentes como sujeitos de pesquisa; a capacidade dos adolescentes decidirem de forma autônoma; e o processo vivenciado pelos adolescentes quando aceitaram serem sujeitos. O estudo foi qualitativo, com amostra intencional, definida pelo critério de saturação das informações. Entrevistaram-se três pesquisadores que tinham adolescentes como sujeitos de uma de suas pesquisas e nove destes jovens. Os dados foram coletados através de entrevista semidirigida, gravada. Todas as pesquisadoras conheciam algum documento legal relativo à participação de adolescentes como voluntários de pesquisa. As jovens surpreenderam-se, pois não sabiam da existência das mesmas, entretanto, as consideraram necessárias para proteger os adolescentes. Em geral, as pesquisadoras e as jovens consideraram que os adolescentes têm capacidade para decidir de forma autônoma participar como voluntários de pesquisa. As jovens afirmaram ter decidido sua participação conscientemente.
Subject: Adolescente
Ética em Pesquisa
Consentimento Informado
Adolescent
Ethics Research
Informed Consent
Editor: Escola Nacional de Saúde Pública Sergio Arouca, Fundação Oswaldo Cruz
Rights: aberto
Identifier DOI: 10.1590/S0102-311X2006000100006
Address: http://dx.doi.org/10.1590/S0102-311X2006000100006
http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0102-311X2006000100006
Date Issue: 1-Jan-2006
Appears in Collections:Artigos e Materiais de Revistas Científicas - Unicamp

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